Chronic Condition Education for Schools

They're in your classroom.
You just don't know it yet.

1 in 10 girls has endometriosis. Many have POTS, EDS, and hypermobility too — going undiagnosed for nearly a decade while sitting their GCSEs. We go into schools to change that. For students, teachers, and everyone in between.

8.9 yrs
Average endometriosis diagnosis delay in England
49%
Of girls have missed a whole school day due to their period
88%
Of students never learned about endometriosis in school
78%
Of women with endometriosis were told they were "making a fuss"
The Problem

Schools are failing
chronically ill students.

Chronic invisible conditions — endometriosis, POTS, hypermobility, and EDS — affect a significant proportion of your students. Most schools don't know, and policy frameworks aren't built to support them. The consequences are severe.

25.9%

Persistent absence rate

Children with chronic health conditions are significantly more likely to have persistent absence — nearly double their peers. This isn't truancy. It's a system that wasn't built for them.

7 yrs

Average POTS diagnosis delay

A student standing up and fainting, or unable to concentrate, may have POTS. Teachers interpret this as laziness or anxiety. The average wait for a diagnosis is seven years — years spent in school, unrecognised.

9 yrs

Later diagnosis for women with EDS

Women with Ehlers-Danlos Syndrome wait nearly nine years longer than men for diagnosis. Many spend their entire school career in pain that teachers write off as attention-seeking or exaggeration.

1 in 10

Girls will have endometriosis

In a class of 30 girls, statistically three will develop endometriosis. Symptoms often begin at age 14 — right in the middle of secondary school. Yet 88% of students say they never learned about it in class.

78%

Were told they were making a fuss

Of women later diagnosed with endometriosis, 78% were told by a professional they were exaggerating — a figure that has risen since 2020. Teachers and school staff are often the first to dismiss them.

Zero

Teachers trained across conditions

There is no existing training programme for teachers that covers endometriosis, POTS, and EDS together. Schools are expected to support students with conditions nobody taught them to recognise.

Claire, Co-Founder
Co-founded by
a mother & daughter
who lived this.
Our Story

Born from a daughter's experience.
Built to change the system.

Eva has endometriosis, POTS, and hypermobility. She has spent her secondary school years navigating chronic pain, exhaustion, and flares — all while fighting a system that wasn't built for her. Missed lessons, no remote work sent home, a school that said she was "too unwell to be in school, therefore too unwell to do the work" — even on the days she felt capable, just not at 9am.

Eva doesn't have A levels. Not because she lacks intelligence or drive — but because the system around her lacked understanding, flexibility, and the legal will to adapt. That's a policy failure, not a personal one.

"We started this because we know the difference it would have made if just one teacher had understood. That's all it takes — one person who knows what to look for." — Claire, Co-Founder

Seen was created by Claire and Eva to bring that understanding directly into schools — through assemblies, workshops, and teacher CPD grounded in lived experience, clinical knowledge, and a genuine passion for changing what happens next for young people.

What We Cover

Four conditions. One cluster.
All invisible. All in your school.

These conditions often occur together — connected by underlying connective tissue disorders and shared mechanisms. Yet schools are trained on none of them. We change that.

🩸

Endometriosis

1 in 10 women — over 1.5 million in the UK

Tissue similar to the uterine lining grows outside the uterus, causing severe chronic pain, heavy periods, fatigue, and inflammation. Symptoms typically begin aged 14 — during secondary school. The average time from symptoms to diagnosis in England is now nearly nine years.

⏱ 8.9 year diagnosis delay
💓

POTS

Postural Orthostatic Tachycardia Syndrome

The heart races on standing, causing dizziness, brain fog, fainting, and extreme fatigue. A student who can't stand up in assembly, or who struggles to concentrate in class, may have POTS — not attitude problems. 4:1 female-to-male ratio; most common onset is adolescence.

⏱ 7 year diagnosis delay
🦴

Hypermobility / hEDS

Hypermobile Ehlers-Danlos Syndrome — 1 in 500

Joints that move beyond their normal range, causing pain, instability, and injury. Ten times more common than previously thought. Writing is painful. PE is a risk. Carrying a school bag causes injury. Yet most schools have no strategy — and many dismiss it entirely.

⏱ 9 years later for women than men
🧬

Ehlers-Danlos Syndrome (EDS)

A connective tissue disorder underpinning the cluster

EDS affects collagen — the body's structural protein — causing hypermobility, chronic pain, fatigue, and a range of systemic complications. It commonly co-occurs with POTS, endometriosis, and MCAS, creating a compounding chronic illness picture that schools are wholly unprepared for.

⏱ Often undiagnosed through school years entirely
The Law Says
"Schools must not discriminate against disabled pupils. They have a duty to make reasonable adjustments — anticipatorily and on an ongoing basis — to avoid placing disabled pupils at a substantial disadvantage."
— Equality Act 2010, as applied to schools (DfE guidance)

"The governing body of a maintained school must make arrangements for supporting pupils at their school with medical conditions."
— Children and Families Act 2014, Section 100 (statutory duty)

Endometriosis, POTS, and EDS all qualify as disabilities under the Equality Act 2010. Schools have legal obligations — but most don't know it.

The Policy Crisis

Schools have legal obligations they are routinely failing to meet.

The Equality Act 2010 and the Children and Families Act 2014 give students with chronic conditions clear legal rights. Chronic conditions that fluctuate — like endometriosis, POTS, and EDS — explicitly qualify as disabilities under the Act. Schools are failing these students not from bad intention, but from a complete absence of knowledge and training.

What schools are currently doing that needs to change:

  • Refusing remote learning for students with recurring chronic conditions
  • Applying punitive attendance policies to medically unavoidable absences
  • Failing to create Individual Healthcare Plans (IHPs) proactively
  • Treating chronic pain as "making a fuss" rather than a protected disability
  • Defaulting to SEND frameworks that don't fit chronic physical illness
  • Leaving communication between NHS and school entirely to parents

What Seen helps schools move towards:

  • Proactive IHP creation for any student with a qualifying condition
  • Remote learning access for students with diagnosed chronic conditions
  • Attendance policies that formally exempt verified chronic absence
  • Staff who can recognise symptoms and respond without dismissal
  • A school environment that complies with — and embodies — the Equality Act
Eva Frye — living with endometriosis, POTS and hypermobility
A Real Story. A Systemic Failure.

Capable of learning. Incapable of doing it at 9am.

Eva has endometriosis, POTS, and hypermobility. At her worst, she couldn't get to school. But at 2am, 4am, 7pm — when her pain had eased and her body allowed it — she could have been learning. She was ready. She was willing.

"They said she was too unwell to be in school, therefore too unwell to do the work. But that isn't the same thing. Not even close."

Her school refused to send work home. Refused remote access. Measured her capability entirely by whether she could be present at nine in the morning — without ever asking whether she was capable the rest of the time. She was. The system just wasn't built to notice.

Eva doesn't have her A levels. Not because she isn't intelligent. Because the policy framework around her had no room for a student who could learn — just not on the school's schedule.

The Policy Agenda

Six things schools must change.
The law already requires most of them.

The Equality Act 2010 is clear: students with chronic conditions that substantially affect their ability to carry out day-to-day activities are disabled under the law. Schools have a duty to make reasonable adjustments — not when it is convenient, not when staffing allows it — but as a legal obligation. The Children and Families Act 2014 adds a statutory duty to support pupils with medical conditions. These laws exist. Schools simply aren't applying them.

The most common reason given? Staffing. Capacity. Not enough people. But resourcing constraints are not a legal defence against a disability rights obligation. These aren't optional enhancements — they are the floor. What follows is the policy change agenda that Seen brings into every school it works with.

01

Remote Learning Must Be a Right, Not a Favour

Remote Access

Across England, schools routinely refuse to send work home for students who are too unwell to attend. The reasoning seems logical on the surface — if you're too ill for school, you're too ill to work. But this conflates physical presence with cognitive capacity, and for students with chronic conditions, the two are not the same thing.

Endometriosis, POTS, and hypermobility flare and remit. A student may be incapable of getting dressed, travelling, and sitting upright for seven hours on a Tuesday morning — yet entirely capable of working through a maths worksheet at 7pm that same evening when her body has eased. Her GCSE grade does not care whether she completed the work at 9am or 9pm. Her future does.

"She could do the work at two in the morning, at four, at seven in the evening — those were her windows. The school's position was that if she wasn't there, she wasn't learning. But she was capable. The system just wasn't built to see it."

Remote learning as a reasonable adjustment for students with diagnosed chronic conditions is exactly what the Equality Act 2010 envisages. It is not a reward for good attendance. It is not a bonus. It is a reasonable adjustment to a substantial disadvantage — which is precisely the legal test. Schools that refuse it are not cautious. They are non-compliant.

What needs to change: Schools should have a written policy for remote learning access during chronic illness absence — triggered by medical evidence, not by attendance targets. Work should be sent home as a matter of course. Deadlines should be flexible. Submission windows should reflect the student's available hours, not the school's preference.

02

Attendance Policies Are Punishing the Wrong People

Attendance

Persistent absence thresholds, attendance warnings, and parental prosecution letters were designed for avoidable absence. They were not designed for a student with endometriosis who is managing a chronic condition that causes her to be incapacitated for three to seven days every month — roughly 36 to 84 days every academic year — before she has even had a diagnosis.

Yet these students receive the same letters. Their parents receive the same calls. Their absence goes down in the same register. And in academies with strict attendance-linked interventions, students with medical conditions are being penalised for a system that has failed to distinguish between wilful truancy and physical incapacity.

The DfE's guidance is clear that schools should take medical evidence into account when applying attendance policies. What is less clear — and rarely implemented — is a proactive framework for doing so. Schools wait for parents to advocate. They wait for GP letters. They wait to be told. Students without assertive parents, or students whose conditions haven't yet been diagnosed, fall through every time.

What needs to change: Attendance policies should contain explicit carve-outs for verified chronic medical conditions. Individual Healthcare Plans (IHPs) should be created proactively — before absence accumulates — and should include a clear attendance protocol that staff can apply consistently, without requiring parents to re-fight the same battle every term.

03

Chronic Illness Is Not SEND — And Conflating Them Fails Everyone

Classification

When a school encounters a student with endometriosis, POTS, or EDS, it reaches for the nearest available framework — and that framework is almost always SEND. Special Educational Needs and Disability provision has expanded significantly, and schools have developed real expertise in supporting students with ADHD, autism, and learning differences. But chronic physical illness is not the same as a neurodevelopmental condition, and the strategies, adjustments, and staff training designed for one do not transfer to the other.

A student with ADHD needs consistency, structure, and specific pedagogical approaches. A student with endometriosis needs pain management access, flexible deadlines, remote learning options, and a member of staff who doesn't dismiss her when she says she can't sit down. These are different problems. They need different solutions.

ADHD and autism have dedicated frameworks, specialist vocabulary, and — increasingly — trained staff. Chronic physical illness gets lumped in as an afterthought. These students fall through the gap precisely because the gap exists between categories.

The result is that chronic illness gets under-resourced because it doesn't fit neatly into existing SEND structures, and over-medicalised because nobody quite knows where else to put it. Students with endometriosis end up on EHCP waiting lists when what they actually need is a compassionate member of staff and a remote access policy.

What needs to change: Schools should develop a distinct framework for supporting students with chronic physical conditions — separate from, but complementary to, their SEND provision. This includes trained staff, accessible facilities, flexible academic policies, and IHPs that are fit for purpose for a student whose needs fluctuate daily rather than remaining constant.

04

Medical Rooms Need to Actually Be Medical Rooms

Facilities

In previous decades, the school medical room was a room. A bed. A trained member of staff. Somewhere a student in genuine pain could go and lie down for twenty minutes, feel marginally human again, and return to class. The standard was not high. But it was a standard.

Today, in a significant number of secondary schools, the medical room is a chair, a fridge, and a first aid box. For a student with endometriosis experiencing a severe flare — pain that is clinically comparable to labour, for which she has no diagnosis and possibly no medication — there is nowhere to go that offers even basic comfort. She is expected to sit in a chair. Then return to lessons.

"Back in my day you could go and lie down for twenty minutes. The school medical room had a bed. Now it's a chair and a fridge. We're asking students in genuine clinical pain to manage that sitting upright in a corridor."

Heat therapy — a hot water bottle, a heat pad — is one of the most effective and accessible ways to manage endometriosis and menstrual pain in real time. Many schools have policies against hot water bottles for health and safety reasons. Heat pads are permitted in most, but only if the student brings one. For students from lower-income households, or students who simply forgot, or students who didn't expect a flare today because their condition is unpredictable — access to basic pain management should not depend on whether you could afford to pack it this morning.

What needs to change: Schools should have a proper medical rest space — not a chair, a bed or recliner where students can lie down during a flare. Schools should stock heat pads as basic first aid provision for students who need them, provided free of charge. Pain management should not be means-tested.

05

The Equality Act Already Mandates This. Schools Need to Know It.

Legal Duty

Endometriosis, POTS, and EDS all qualify as disabilities under the Equality Act 2010 where they have a substantial and long-term adverse effect on normal day-to-day activities. The Act imposes an anticipatory duty on schools — meaning they should not wait for a student to tell them about her condition before making adjustments. They should already have thought about it.

Section 100 of the Children and Families Act 2014 places a statutory duty on school governing bodies to make arrangements for the support of pupils with medical conditions. This is not guidance. It is a legal duty. And schools are routinely failing to meet it — not because they are deliberately discriminatory, but because they simply do not know that these conditions exist, qualify, and require action.

When schools cite staffing levels or capacity as reasons for not providing remote access, not creating IHPs, or not making reasonable adjustments — they are not citing a legal defence. Resource constraints do not extinguish the obligation. They may affect what is "reasonable" in the adjustments test, but the duty to do something remains absolute.

Schools aren't failing these students because they are unkind. They are failing them because nobody taught them that the law applies here. That is exactly what Seen does.

What needs to change: Every secondary school should have at least one member of staff who understands the legal framework around chronic illness — and the specific conditions that trigger it. IHPs should be created proactively. Governors should be briefed. Seen's CPD sessions are built to deliver this directly.

06

Boys Need to Understand This Too. It Starts Here.

Inclusive Education

Endometriosis affects 1 in 10 girls. But it will touch almost everyone — because the boys sitting next to them in class will become partners, fathers, employers, GPs, and friends to women living with it. The moment you tell a boy that the woman he will eventually care about has a 1 in 10 chance of having a condition he's never heard of — the conversation changes entirely.

Only 31% of men know what endometriosis is. That statistic does not begin in adulthood. It begins in the classroom, in the moment nobody mentioned it. Boys who are educated about chronic illness become men who do not dismiss it. They become the colleague who covers when she can't come in. The partner who goes to the appointment. The manager who doesn't question the sick day. The friend who knows what she's dealing with.

EDS and POTS affect boys too — though they are diagnosed even later in males than females. Boys with hypermobility are told they are clumsy, unathletic, attention-seeking. They are not. They are undiagnosed. An education programme that reaches boys as well as girls catches both.

What needs to change: Chronic illness education in schools must be whole-school — not separated by gender, not confined to RSE lessons, not framed as a "girls' issue." When we go into schools, we speak to everyone. The assembly that changes a boy's understanding of pain changes the trajectory of the women he will spend his life alongside.

31%
of men are aware that endometriosis even exists
1 in 10
girls in your school will have endometriosis
30%
of those with EDS and hypermobility are male — they're being failed too
This Is For Everyone

Not just a girls' issue. Not even close.

We don't just go into schools to talk to girls about their periods. We go into schools to talk to everyone — because chronic illness doesn't only need the person who has it to understand it. It needs every classmate, every boy, every future partner, manager, GP, and teacher.

Only 31% of men know what endometriosis is. That statistic begins in school. When boys are never taught about endometriosis, they become the adults who dismiss it. We change that conversation early.

POTS, hypermobility, and EDS affect boys too — often dismissed as clumsiness, attention-seeking, or weakness. Male students with these conditions are just as let down by a system that doesn't know they exist.

"Every boy in this room will know someone with endometriosis. You just don't know it yet. Today you will." — Opening line, Seen's student assembly

What We Offer

Practical sessions that create
real, lasting change.

Seen delivers school sessions that combine clinical accuracy, lived experience, and age-appropriate messaging. Every session is tailored to your school's needs — whether that's a whole-school assembly or a dedicated teacher CPD day.

🎤

Student Assembly

For students — all genders, ages 12–18

A powerful 60-minute assembly that introduces chronic conditions — what they are, what they feel like, why they matter, and how to be an ally to someone who has them. Delivered with energy, honesty, and Eva's own story.

  • Up to 200 students per session
  • Endometriosis, POTS, EDS, and hypermobility
  • Inclusive framing — for boys and girls
  • Q&A session included
  • Follow-up resource pack for school
From £300 + travel | Single assembly
🏫

Classroom Workshop

For students — interactive, small group, 90 min

A deeper, interactive 90-minute workshop for a single year group. Students explore the conditions in detail, discuss real scenarios, and leave with knowledge that changes how they see themselves and their peers.

  • Up to 35 students
  • Interactive activities and discussion
  • Supports PSHE and RSE curriculum objectives
  • Case studies and real-world application
  • Student take-home information cards
From £400 + travel | Per workshop
📚

Teacher CPD Session

For staff — twilight or INSET

A dedicated CPD session for school staff covering clinical knowledge, legal obligations under the Equality Act and Children and Families Act, and practical strategies for supporting chronically ill students in the classroom.

  • Up to 30 staff members
  • Legal framework: Equality Act & IHPs
  • Recognising symptoms and responding appropriately
  • Attendance policy reform guidance
  • Practical classroom adaptations
From £450 + travel | Twilight session (90 min)
🏆

Whole-School Programme

For the whole school community — full day

Our most impactful offering — a full school day that combines two student assemblies, a year-group workshop, and an end-of-day staff CPD session. This is systemic change in one day.

  • Two student assemblies (different year groups)
  • One 90-minute classroom workshop
  • Full 90-minute staff CPD session
  • School policy review resource pack
  • Follow-up email support for 3 months
From £1,100 + travel | All day | Best value
🔁

Annual Partnership

For academies and multi-school trusts

A recurring annual relationship for schools that want to embed this into their calendar. Spread across the year — helping new year groups as they arrive, refreshing staff knowledge, and building a genuinely inclusive culture.

  • 2 student assemblies per year
  • 1 full-day staff INSET session
  • Access to digital resource library
  • Named contact for ongoing questions
  • Priority booking for additional sessions
From £1,500 per year | Multi-school pricing available
🆓

Free Trial Sessions

Pilot schools — limited availability

We're currently offering a small number of free trial assemblies to schools willing to provide honest feedback and spread the word. This is how we grow — school by school, teacher by teacher.

  • Full free student assembly
  • In exchange for written testimonial
  • Help us spread the word within your academy trust
  • Very limited availability — apply early
Free | Limited availability | Apply to register interest
How It Works

Simple to book.
Significant in impact.

We've made the booking process as easy as possible. From first contact to session delivery, we handle everything.

1

Get in Touch

Drop us a message with your school name and what you're interested in. We'll respond within two working days.

2

Brief Call

A short 20-minute call to understand your school's context, current challenges, and which sessions would work best.

3

Tailored Proposal

We send a simple proposal confirming the session, date, logistics, and cost. No hidden fees, no complicated contracts.

4

We Deliver

We come to your school and deliver the session — bringing energy, empathy, clinical accuracy, and genuine lived experience.

5

Follow Up

Every booking includes follow-up resources and a brief check-in to answer any questions that arise afterwards.

Why This Matters

One session changes what a teacher does next. That changes a student's next nine years.

A teacher who recognises a student standing up and immediately feeling dizzy might be experiencing POTS can change the path to diagnosis. A boy who understands endometriosis becomes a better partner, colleague, and human being. A school that builds an IHP proactively keeps a student in education. This is not just awareness. It's intervention.

8.9 yrs
Endometriosis
diagnosis delay
~1 hr
Length of a
Seen assembly
Difference it makes
to the student who's seen
Get Started

Book a session for your school.

Whether you're a PSHE coordinator, headteacher, or school governor — we'd love to hear from you. Free trial sessions available for early schools.

Email Us to Book See How It Works

hello@seen.education  |  Based in England, travelling nationwide